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Parent Advocacy in the Face of Adversity

Autism and Families in the People's Republic of China

Hobart and William Smith Colleges, mccabe{at}hws.edu

This article describes the experiences of 43 families of children With autism in the People's Republic of China. Qualitative analysis of intervieWs and questionnaires revealed three main themes regarding caregiver and family experiences. First, parents reported many openly discriminatory beliefs and practices against individuals With disabilities and their families. Second, public schools in China often reject students With autism, limiting opportunity for intervention. Finally, parents in this study reported sacrifices and decisions that demonstrate the love for their children that is so often named as an important part of Chinese culture. Although this is similar in many Ways to parents all over the World, the challenges and obstacles faced by parents in China, and the lack of assistance for them, make consideration of their efforts and commitment worthwhile.

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