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Focus on Autism and Other Developmental Disabilities
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Conference

The Interpretative Conference: Sharing a Diagnosis of Autism with Families

Michal S. Nissenbaum

Developmental Disabilities Center, University of Kansas Medical Center, 3901 Rainbow Blvd., Kansas City, KS 66160-7340, mnissenbaum{at}kumc.edu

Nona Tollefson

University of Kansas

R. Matthew Reese

Kansas CEDDARS and the coordinator of psychology at the Developmental Disabilities Center at the University of Kansas Medical Center

With the recent reauthorizations of Public Law 94-142, there has been a greater push to identify and treat children with autism. As a result, autism is currently diagnosed and treated at younger ages, and nonmedical professionals who work with young children increasingly face the task of informing parents that their child has autism. To examine professionals' and parents' perceptions of giving and receiving a diagnosis of autism, 11 nonmedical professionals and 17 parents of children with autism participated in a series of interviews that were transcribed, unitized, and categorized using Lincoln and Guba's (1985) method of naturalistic inquiry. Based on the interview data, nine recommendations for practice were developed. The recommendations provide guidelines that nonmedical professionals can consult when faced with the task of sharing a diagnosis of autism.

Focus on Autism and Other Developmental Disabilities, Vol. 17, No. 1, 30-43 (2002)
DOI: 10.1177/108835760201700103


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